Living with Fetal Alcohol Spectrum Disorder (FASD)

September is FASD Awareness Month, a time to increase understanding of Fetal Alcohol Spectrum Disorder (FASD) and recognize the strengths, challenges, and lived experiences of those affected by it.

People with FASD often navigate barriers that can impact education, employment, health, relationships, and daily life. Yet with understanding, meaningful support, and inclusive communities, people with FASD can thrive and lead fulfilling lives.

We’re grateful to community member Michael Wallin for sharing his personal story. In his own words, Michael reflects on the challenges he has faced, the supports that have helped him along the way, and the resilience that continues to guide him forward.

My name is Michael Wallin. I am 57 years old and I was born with Fetal Alcohol Spectrum Disorder (FASD). Living with FASD has been a challenge right from the start. I was born 4 weeks premature and suffered from Failure to Thrive. I didn’t walk till I was 3 and 1/2 and had mental challenges in school and was also mercilessly bullied throughout. But despite all this I managed to graduate from high school albeit 2 years later than the other students (I was 20).

As an adult I have many mental and social problems. I am also fighting autoimmune disease and arthritis which is challenging for I am very hypersensitive to pain. It can be overwhelming at times. I cope by writing poetry, songs and stories. I obtained a diploma in dramatic scriptwriting when I was 28.

I go to the Wabano Centre for Aboriginal Health here in Ottawa frequently in many programs. They provide counselling when needed and have many supportive staff including FASD Coordinator Cindy Peltier. The doctors there also help with my illness and its complications. I am grateful for all their support and care. My family also supports me in fact it was my sister Cathy who introduced me to Wabano.

In conclusion, I live with a strong sense of spirit and self love and self care which helps me face fears and take care of myself including IV infusion treatments for my illness which can be scary at times. I am feeling confident as I approach my 58^th birthday in December. I continue to write and enjoy my work. I thank the Creator for everyday that I live.

Michael’s story is a reminder that no one succeeds alone.

Supportive families, trusted relationships, accessible healthcare, community programs, and understanding professionals can make a profound difference in the lives of people with FASD. These connections help build confidence, foster belonging, and create opportunities for people to pursue their goals and interests.

As we recognize FASD Awareness Month, let’s continue working toward communities where people with FASD are understood, supported, and valued for who they are.

Thank you, Michael, for sharing your story with us.